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Onboarding to the Shared Digital Health Record
General practices and other primary care providers need to take several steps to share patient data through the Shared Digital Health Record.
2. Sign the access and use agreement and acquisition schedule
Before patient data is shared with the Shared Digital Health Record, your organisation must sign:
- an Access and Use Agreement (overarching information sharing agreement with Health NZ)
- supporting PMS Information Acquisition Service Schedule (a specific Shared Digital Health Record agreement to provide patient data to the service).
4. Data sharing and technical set up
An overview of what is involved for data to be shared between participating general practices and the Shared Digital Health Record.
Your practice does not need to do anything during the initial data load process. Health NZ will work with your practice management system supplier to schedule a date for your enrolled patient data to be sent to the Shared Digital Health Record.
The initial data load will include historical information about your enrolled patients':
- health conditions, such as asthma, diabetes and other conditions (sometimes referred to the ‘Classifications list’ in PMSs)
- observations including vital signs like temperature, heart rate, blood pressure, respiratory rate, pulse oximetry (SpO2), weight and height
- allergies and intolerances, for example an allergy to a medicine like penicillin.
After the initial upload, any updates to patient records (this includes enrolled and unenrolled) in your PMS will be automatically sent to the Shared Digital Health Record in near real time.
These updates will also respect and not share records that are:
- marked private or confidential in your PMS
- flagged in your PMS as do not share with the Shared Digital Health Record
- of patients who have globally opted out of the Shared Digital Health Record.
Patients opting out or in
A patient may decide to opt out or back into the service after the initial data load for the practice has taken place.
When a patient opts out, any data held in the Shared Digital Health Record about them is archived and no longer searchable in the service. It is essentially treated as deleted. Archived records are held for 10 years (with legislation exceptions) before being permanently deleted. Archived data can only be accessed by a limited number of authorised people to support investigations, such as a complaint to the Health and Disability Commissioner.
If a patient opts back in, their data history needs to be re-copied into the Shared Digital Health Record from the person’s enrolled general practice. It is important to note that there may be gaps in the patient’s record as historical casual encounters will not be included in the opt-in process.
The process for re-importing their history will be managed between Health NZ and the PMS supplier.
Deceased persons' data
Deceased people’s data will be archived in the Shared Digital Health Record and no longer searchable. Archived records are held for 10 years (with legislative exceptions) before being permanently deleted. Archived data can only be accessed by a limited number of authorised people to support investigations, such as a complaint to the Health and Disability Commissioner.